Brielle is
schedule for tympanostomy surgery Dec. 5th, 2014. She has
complete blockage in both ears; her ears are filled with fluid. Due to the
disease her ears are narrowing and there is no ventilation. Fluid is building
up behind her eardrums and need to be drained.
This will be her
first surgery; it's considered minor surgery. Talking to other parents with ML children; it’s
not a big deal. The biggest concern is sedation, due to her heart and
respiratory issues we need to make sure a high risk pediatric anesthesiologist
takes care of her; which her cardiologist took care of. She has been sedated
before for MRI’s, besides the drowsiness after; I think she has done fairly
well.
Surgery will be at
a different hospital which has me a little concerned. Phoenix Children’s
Hospital is the only hospital that I trust because that’s where all her
specialists are. Unfortunately, her ENT does not have rights at PCH and the
surgery will need to be done at Banner Desert. She was born at Banner Desert
and her sisters Jaileen and Isabella were also. They have always been great;
just worried in case there are complications… Just being a mommy!
Putting all my
worries aside... I am very excited for the aftermath! Since she has complete
blockage, she suffers from deafness. (Which was very sad for me to hear,
because I was under the impression she could hear me quite well all along.) She
tries so hard to talk and communicate with us, I feel like she has so much to
say! I think it will open up a whole new world for her; she will be able to
hear so many new sounds and voices clearly. I just can’t wait to hear
her little voice once she can hear!
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