Friday, December 5, 2014

To the left, to the left! Brielle’s surgery was a huge success!



The procedure took about an hour. (only reason it was so long is because of the Auditory Brain stem Response test.) When I walked into Post Op, I couldn’t believe she looked so good! She usually doesn’t do well after anesthesia. One of the reasons we were asked to prepare to stay the night, because we just don’t know what the sedation will do to her. Before the procedure I spoke to the anesthesiologist, and requested for him to do the most minimum sedation possible. This anesthesiologist did an amazing job; they didn’t even put an IV in her! If you have an I-cell child… this is music to your ears! These kiddos have very thick skin... I mean that literally! Their skin keeps thickening through time because of the storage in the cells. Last IV she had put in they popped 4 veins before they can get one going. 

She said “mama” as soon as I walked in and was trying to tell me something. She looked drowsy and was floppy but content. (She’s usually screaming, nauseous, very uncomfortable, and needs to be medicated and hooked on machines until she feels better.) As soon as I held her in my arms, I noticed she was very observant; she was taking everything in. She kept talking (in her little language of course); she was listening to herself. It was an amazing feeling to see her discover new sounds and noises. 

In the waiting room before going in to see her, the surgeon came to give me the results. Bad news, she is completely deaf from her right ear. He thinks the disease has damaged her inner ear with the storage in the cells. (Ugh..these stupid storing cells!) THE GREAT NEWS is she should have full activity in her LEFT EAR! Woot! Woot! I just can’t wait for all the things she is going to start saying. We thought she was spunky before, wait until she can say her words clearly and add more to her vocabulary!!

When we got home she was a little more coherent, I wanted her to rest so I put her down for a nap. Ya... That didn’t last long; I was having a kick from all the yapping she had going on in her crib. She is known to have intense conversations with her stuffed animals, but today was REAL talk! Like “listen here, I run this crib” kinda talk!

I am so excited for her, one day in and her speech has already improved so much! I can’t even imagine what I’ll be hearing from her tomorrow.

Thank You Jesus and thank you all for always keeping Bri in your prayers!  

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