It's been along time since I wrote... I've actually decided to take a good long break from many things.
If you follow Brielle on FB, you know she is healthy and continues to be as sassy as can be. The girls and I are doing well. They are very joyful and just go with the flow.
We stay busy, all the girls including Brielle; cruise all over the city with me. Both my jobs get me out a lot and they just tag along for the ride. I have two great nurses that take amazing care of Brielle, so grateful for them.
Our lives at home have stayed the same, the biggest change is that I'm busting my butt working all they time, but both my jobs are very flexible to where I can be available for the girls, particularly Bri whenever needed.
Been thinking a lot about the blog and why I started it. Although, there is not a lot I share anymore about Brielle and I-Cell, please know that my blog was meant with the intention to help new I-cell families.
It's very important you join our I-Cell support group on Facebook. We have great families and advocates on there. A lot of information that is shared to give your child the best quality of life.
As for now I don't have a lot to write about. Just cruisin...
Blissful. Rare. Irreplaceable. Everlasting. Love. Life. Extraordinary. This is what my sweet baby represents and this is the story of her fight against a disease that she cannot beat.
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